New research sheds light on parents' perspectives on young people's daily life with psoriasis in efforts to improve adolescents' self-management. (J Dermatolog Treat. E-pub March 2019) Researchers conducted focus group discussions and interviews with eight parents of adolescents with psoriasis.
Analysis of findings show that while parents initially perceived psoriasis mainly a physical and treatment-related burden, they eventually realized its socio-emotional impact. Parents acknowledged balancing between declining treatment due to fear of side effects and acknowledging the impact on their young people's quality of life and their desire for effective treatment.
The authors call for future research to consider integration of shared decision-making and self-management support interventions in routine daily care for young people with psoriasis.