EB Research Partnership and EB Research Foundation Form Largest Global Organization Advancing EB Research


The group will combine to leverage EBRP's innovative business model to accelerate treatments and cures.

EB Research Partnership (EBRP), based in New York, and EB Research Foundation (EBRF) of Australia are uniting to become the largest global organization focused on funding research to discover treatments and cures for Epidermolysis Bullosa (EB).

As the two leading organizations funding EB research across the globe, EBRP and EBRF have formalized their funding partnership, which began in 2018, with EBRF coming under the EBRP banner as "EB Research Partnership Australia." 

They will leverage EBRP's competitive grant approval process, Scientific Advisory Board, and venture philanthropy business model to compound the impact of research funds. 

"We're thrilled to join forces with EB Research Foundation, connecting the globe to advance promising research to treat and cure EB. They have been wonderful partners over the past two years, and we believe that we will achieve greater and faster results for those battling EB together as one organization," says Alex Silver, Chairman of EBRP, in a news release.

Scott Didier AM, Chairman of EBRF and Executive Board Member of EBRP adds, "Our shared mission to find treatments and cures for EB will be better served by uniting our organizations. We are looking forward to the great work our collective team will accomplish with combined resources and an established global presence."

Streamed globally by Amazon, the organizations' inaugural joint effort is a virtual event, Venture Into Cures, airing on November 18, 2020 at 8pm EST (November 19, 2020 12pm AEDT) at www.ventureintocures.org

The event will feature stories of individuals with EB and their families alongside EBRP Co-Founders Jill and Eddie Vedder and celebrity friends. 

To commemorate the partnership, a limited-edition t-shirt designed by renowned Australian illustrator Travis Price is available for purchase, with all proceeds benefiting critical research. For shipping from the USA, purchase your t-shirt at bonfire.com/store/ebresearch. For shipping from Australia, visit ebresearch.org.au/shop.

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