To mark the first-ever Atopic Eczema Day, the International Alliance of Dermatology Patient Organizations (IADPO – also known as GlobalSkin) has launched AltogetherEczema, a new movement to elevate the urgent and unmet needs of the global eczema and atopic dermatitis community. AltogetherEczema.org will serve as the central hub for both people affected by eczema or atopic dermatitis, as well as patient leaders, providing resources, gathering insights and seeking to empower collective advocacy.
“The inaugural World Atopic Eczema Day is a long-awaited chance to honor and empower those affected by eczema or atopic dermatitis, and finally puts their needs in the spotlight,” said Christine Janus, CEO of GlobalSkin. “This community faces a huge range of challenges, whether physical or emotional, every single day. We hope by launching AltogetherEczema, wecan kickstart a conversation within the community about what matters most. A clearer understanding of issues and priorities for those living with the condition will ensure that, together, we can work towards meaningful and relevant change.”
Globally, eczema affects up to 20% of children and 10% of adults. Atopic dermatitis is the most common and chronic form of eczema, which typically causes patches of dry, itchy skin that may worsen and can erupt into a rash when scratched. But, people also often endure a significant negative impact on their emotional wellbeing, from an inability to sleep, as well as associated feelings of social exclusion and depression or anxiety. It is this hidden, multidimensional burden that needs urgent attention.
AltogetherEczema urges the eczema and atopic dermatitis community to share their story and experiences of life with the condition, as well as their aspirations for the future to help investigate the key issues faced globally, utilizing shared knowledge and insight to build advocacy skills and campaign for change.
This World Atopic Eczema Day, GlobalSkin invites people living with or caring for someone with eczema or atopic dermatitis to participate in a short survey, outlining what it is like to live or care for someone with this condition.