Survey: Chronic Hive Patients Unsatisfied with Quality of Life, Care

July 18, 2022

Nearly three in 10 respondents can't afford the cost of chronic hives treatment.

Only one-fourth of patients with chronic hives are satisfied with their current quality of life, according to a recent survey conducted by Health Union.

The inaugural Chronic Hives In America survey illuminates the perspectives and experiences of people living with chronic hives. These findings also support, Health Union's 40th condition-specific online health community.

"I ended up seeing three different allergy specialists before I was told that I have chronic hives," says Christy Amos, a patient leader, in a news release.  "I'm glad to be a part of a community where I can share my experience and help support others who are also dealing with chronic hives."

Access to treatment can be a particular pain point for people with chronic hives. Nearly three in 10 respondents said they are unable to afford the cost of chronic hives treatment. Only 18 percent of respondents have ever used injection medications, which are among the most expensive treatments and often used for severe cases of chronic hives.

Affordability is one of multiple factors that could contribute to low condition control. Three in 10 respondents said they considered their chronic hives to be controlled on their current treatment plan. An even lower amount – 15 percent - said they feel in control of their overall health.

Only a quarter of respondents said they are satisfied with their current quality of life. Specifically, more than half said their chronic hives have had a negative impact on their ability to sleep, four in 10 said it has negatively impacted their mental health, and one-third said their condition has negatively affected both their self-esteem and their social life.

Half of respondents said they feel alone in their struggle with the condition. For many, this could be related to not knowing others who are also living with the condition. In fact, 84 percent of respondents said they have never connected with other people living with chronic hives, while only 8 percent currently keep in touch or engage with other chronic hives patients.

"People with chronic or complex health conditions are constantly looking for meaningful connections throughout their health journeys, whether to obtain information or find and share support," says Olivier Chateau, Health Union's co-founder and CEO. "With a condition like chronic hives, for which so few people know or have the opportunity to engage with others who share their experiences, will be a much-needed resource for many."

The inaugural Chronic Hives In America survey, which was fielded from Jan. 10 to March 18, 2022, included responses from 201 people living with chronic hives. 

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